A poem and expression of the struggles of trying to live well with MS
The Internet and anxiety demons relentlessly tried to convince me that Multiple Sclerosis would steal my happiness, identity, and self-worth. At times, it has, but overall I still live a “normal” life.
My MS diagnosis shattered me. I share my long, ugly coping process to remind others they aren’t alone and your emotional response is normal.
Shortly after my MS diagnosis, I met with my nurse practitioner (NP) to discuss treatment options. Selecting a disease-modifying drug was the first step. DMDs stop the MS progression by preventing demyelination.
The process of being diagnosed with Multiple Sclerosis is complex and long. I share my story and experience.
I’ve been living with Multiple Sclerosis since 2016. But the only person who knows my whole story, the raw, unedited reality I’ve been living, is my husband. Shame, guilt, and denial continue to prevent me from sharing my truth. Until now. This story is raw. It’s the honest recollection of my diagnosis, how I grieved the life and planned future I lost, and how I eventually recovered joy.
The story of the event that led to my MS diagnosis.
I wouldn’t mourn the death of the sun. Even as the earth turns into a Popsicle, I will be filled with happiness. People will be disgusted with my spouts of the sun’s crimes and how she deserved to die, even if it means we all will along side her.
Some days I don’t want to be in my body.
A poem of symptoms so real to you that no one can see.